My Story

I hope that my story inspires you and brings you hope for whatever miracle you are in need of in your own life.

It all happened in October 2010.

I had a difficult pregnancy with my son, Dexter. When we decided to try and get pregnant again we thought it couldn't possibly be any worse. In fact, we said those exact words. I found out I was pregnant before I could even get a positive pregnancy test. The "morning sickness" had hit almost immediately and I couldn't keep anything down. A couple of weeks later it was confirmed by a pregnancy test. We had to start telling people at the 6 week mark because I was so ill I couldn't hide it. A couple weeks after that I was hospitalized for hyperemesis gravidarum (HG). It is something far beyond morning sickness. It involves constant vomitting (like 20+ times a day), lots of weight loss, and lots of time in the hospital. I was in and out of the hospital a few times before I was set up with a PICC line and home nursing care where I was on IV fluids 24 hours a day.

Just when I should have been getting better, things took a turn for the worse when I noticed something wasn't quite right with my heart. I started to lose the ability to walk. I would take a few steps before I would simply collapse. My legs would simply give out. I went in for my weekly (yes, weekly) doctor's appointment and was immediately hospitalized when he saw I could not walk. Test after test was conducted. After a brief bought of being unable to breath, I was put in the ICU. Someone died down the hall from me that first night. No longer could these symptoms be blamed on HG.

Something was going terribly wrong.

At 18 weeks of pregnancy I was experiencing Congestive Heart Failure and I was showing signs of liver and kidney failure. My doctor in the hospital recommended an abortion. My OBGYN, a good Catholic man, was supportive in my absolute insistence that I see the pregnancy through, at least until viability at 24 weeks. I was released from the hospital in order to travel to see specialists. We were living in an small, isolated town in the middle of the Mojave desert so traveling was a necessary burden.

I saw doctor after doctor after doctor. No one could give me answers. Upon seeing my very pitiful condition one doctor, a cardiologist, simply dropped his jaw in amazement, and, after composing himself, simply said, "Something is profoundly wrong with you. I just don't know what it is." Those aren't really the kind of words you want to hear from a doctor.

I was dying, and everyone knew it.

There I was, a young wife and mother of a 2 year old boy with an ever growing pregnant belly, unable to walk, hooked up to an IV pole, sleeping 20 hours a day, and slowly wasting away as my body systems shut down. I made my husband take me outside, just so I could see something, anything. All I could do was sit on a bench. But hey, at least I was without my IV pole for a couple of hours.

But you know how this story must end as I'm sitting here writing it for you over 4 years later.

It was a last ditch effort by an OBGYN who researched tirelessly for an answer. Many of the specialists had mentioned it in their brainstorming sessions, but each had dismissed it as a possible diagnosis. It was an autoimmune condition called Addison's Disease, treated by simple corticosteroids.

Three small pills saved my life.

Addison's disease is an autoimmune condition where your body basically attacks itself and kills off your adrenal glands. The adrenal glands produce cortisol, the only hormone necessary for life. My adrenal glands had been ravaged and later tests revealed they were completely nonfunctional. Without cortisol my major organ systems were unable to function. I had been experiencing what is called an "Addisonian Crisis."

I shouldn't have lived.

Several very experienced and respected doctors in their fields have reviewed the test results from that time with the same response. I shouldn't have lived. An untreated Addisonian Crisis normally leads to death within a matter of hours or maybe days if they are lucky. I lived for weeks. If I hadn't been there standing before them they couldn't have believed that a patient with those test results could have lived. It was a medical impossibility.

I am a miracle.

My heart, liver, and kidneys began functioning again, but there was one big question that still remained: would the little baby girl inside me survive? Shoot, would I even survive labor? At 21 weeks I began experiencing pre-term labor and fought it for the remainder of my pregnancy. While my labor and delivery was a far cry from ordinary, I am happy to report that I delivered a healthy baby girl at full term.

My daughter is a miracle.

4 years later I still suffer from the consequences of that pregnancy. Addison's Disease is a lifelong condition for which there is no cure. My body is dependent on replacement steroid doses that I take multiple times a day. Cortisol needs vary from day to day and hour to hour. There are no tests to tell me how much I need so I have to just guess.

Miracles aren't always what you expect.

I am not healed. I never will be. I have good days and bad days. Every once in a while Addison's Disease lands me int he hospital fighting for my life. I have come very close to dying a number of times over the past few years. I spend days and weeks at a time where I'm sick in bed and hardly able to function. It is hard. I suffer. I am disabled, for the rest of my life. It is a hard pill to swallow.

I think in the end we all have our Addison's disease.

Whether it is a chronic illness, depression, financial struggles, relationship and family problems, addiction, or something else, we all have something we fight. Some people ask why God would do this to me and place blame on him, but I don't see it that way. I have seen how Addison's disease has pushed and stretched me.

I know that God could heal me, but I am grateful that in His eternal wisdom, He does not.

My struggle is helping me become who He wants me to be. Yours are too. It isn't always easy to see it, particularly in those moments where we are suffering and either literally or figuratively in the hospital fighting for our lives, it is nevertheless true. Those moments that challenge us the most are the ones were we can rise to the occasion and choose God, despite the problems of life. We can choose to be grateful, no matter what. We can do this! No matter what your "Addison's disease" is, you can make it with the help of God.

I'm a dreamer. I dream big.

Getting used to a new life of disability hasn't always been easy. Sometimes I choose to do things in spite of my disability, just to prove that I can still do amazing things. I run a food blog. I even wrote a cook book. I've set out to share love to the world the same way I share it at home, through food. I do it to prove to the world that miracles happen and dreams really do come true. I might be a little crazy in my feats of strength or the heights of my dreams, and sometimes it lands me in trouble, but I will keep on pushing and keep on fighting because for whatever reason, God has saved me and I am still here.
In October 2011, just 1 year after being in the ICU with heart failure, and just 7 months after giving birth, I completed a month-long Ironman (where you do all the Ironman distances over the course of a month) to show the world what had happened, and to prove that miracles really happen.

Yes, I believe in miracles. They really do happen.

Our miracle Adele at age 3.

I am one of those people whose eyes are drawn to shiny things. I like glitter. I like sparkles. I can’t keep my eyes off of them. When I finally caved in and bought a walker to use on my bad days, I knew I'd cover it in glitter.

Sometimes you just have to get your shiny on.

Addison's disease does its best to keep me down. The bad days are bad, but I refuse to let it limit my life. My glitter walker is a symbol of the way I choose to live my life. I try to find the shiny in everything, including in my disability.

I am the girl with the glitter walker.